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Remission in RA - Patient Perspective
Remission in RA - Patient Perspective
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At OMERACT 2010 the draft ACR-EULAR remission criteria were criticized during a workshop because participants felt insufficient patient-important information was incorporated. A working group was formed to tackle this problem.
Qualitative work and surveys published by this group have established that pain, fatigue, and independence are the most important domains that patients consider to decide whether they are in remission (‘disease activity as good as gone’).
The next phase was an ambitious longitudinal study to propose, and where necessary validate instruments for these domains, and then decide whether information from these instruments was such that the current ACR-EULAR definition would need to be changed.

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Future research agenda:
Do you agree Independence is an important domain?
Do you agree that the current numerical rating scale for Independence should be further validated?
Caroline commented 4 months ago
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Future research agenda: Do you think the patient global cut-off point needs to be reconsidered?
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Thank you very much to everyone who helped us make the SIG a success. If you would like to continue the discussion we're still interested in any other comments you have that you didn't feel able to make in the... (More)
Tiffany commented 4 months ago
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Tiffany Westrich-Robertson
Patient Research Partner, CEO International Foundation for Autoimmune & Autoinflammatory Arthritis (AiArthritis)
Just wanted to say great conversation yesterday! Prior to reviewing the background info yesterday morning I didn’t know much about this group. But wow, I’m so glad I read up and joined! Excited about talking more around bringing this project... (More)